Resources That Impacted Our Family’s Journey Through Eldercare
In every case, I wish I had visited these websites earlier:
- Alzheimer’s Association (with links to state organizations)
- Minnesota Department of Health (with links to nursing home surveys, report cards, complaints, regulations and licensure)
- U.S. Department of Health and Human Services
- Official government site for Medicare
- Comparing nursing homes on the Medicare site
- Hospice Foundation of America
- ElderCare Rights Alliance
- University of Minnesota Center on Aging: http://www.coa.mn.edu/
Other Resources:
Kane, Robert L, M.D. and West, Joan, It Shouldn’t Be This Way:The Failure Of Long-Term Care, Vanderbilt University Press, 2005.
Kane, Robert L, M.D. with Jeannine Ouellette, The Good Caregiver, A One-of-a-Kind Compassionate Resource for Anyone Caring for an Aging Loved One, Avery, 2011.
Byock, Ira, M.D., The Best Care Possible, A Physicians’s Quest to Transform Care Through the End of Life, Avery, 2012.
A worthy film about the transformative use of music to unlock memories in people with dementia: Alive Inside: A Story of Music and Memory, 2014.
Meeting of the Minds Dementia Conference, sponsored by the Alzheimer’s Association and held annually in March
Caring for a Person With Memory Loss Conference, offered each year (usually the Saturday after Memorial Day) at the University of Minnesota
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